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Hysterectomy?…..Yes please! – Francesca’s Story

Hi, thank you for taking the time to read my story 🙂

Where do I begin??

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I’m 31 and suffering with a very large submucousal and pedunculated fibroid, growing from the back wall of my uterus that is as large wide as it is long. My extended womb presses on my bladder and bowels, causing chronic constipation and regular UTI’s + all of the other horrid symptoms I won’t mention. The bleeding has always been my biggest problem though, losing up to a litre of blood every couple of weeks. It frightens me and I don’t have the life I would like because of it. My social life is non-existent and I struggle to take care of my only child sometimes.

I’ve never been able to get the doctors or consultants to take me seriously enough because I have only one child and I could want more?? Errmm no thanks!!, I’m young and it’s ONLY a gynecological problem – an attitude some of you have encountered and are probably very familiar with! I’ve even been put under general anesthetic to have a myomectomy for removal, only to wake finding out that it hadn’t been performed and a Mirena coil was put in. I was given no reason apart from that he couldn’t find it and I cried all the way home.

Now 11 years later, with hundreds of trips to the doctors, hospital consultants and A&E visits under my belt I’m finally…and I say finally because it’s not a decision I have taken lightly and have had to push with all my might to get, due to have a Total Abdominal Hysterectomy this coming December and It can not come around quick enough. I’ve suffered so much that I know deep in my heart even the symptoms afterwards will not amount to my hell of a life now.

Of course I feel slightly anxious about it. How it will go? if there will be any complications? will I truly feel better after? how big will the scar be? so on and so on. But one thing that keeps me focused and that’s my goal! To live a happy, healthy life 🙂 and the way it is now and has been for a long time that’s just not what I’ve got. I’m pretty certain that my son will be happier, not having to worry about me all the time, even though I try to conceal it from him as much as is humanly possible.

So my advice tips to anyone about to have, or considering the procedure are:

  • Don’t take one answer as certainty (when we have suffered so much only we know our bodies and what’s best for us)
  • Do your research, there’s plenty of procedures for all sorts of gynae problems and you have to find one that you’re comfortable with.
  • Know that you’re not alone! Sometimes finding other stories like what people have already wrote can be an inspiration and insight into helping us choose our own paths.

Good luck!!

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in my own words book coverNow available on our online store and all other online book store’s. In My Own Words: Women’s Experience of Hysterectomy is full of many other real-life stories from women the world over.

Other people’s stories help women feel less isolated. They show that they aren’t going mad, missing the point or stupid.

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Linda Parkinson-Hardman

Transformational coach and founder of the Hysterectomy Association. Professionally I'm an information scientist who specialises in the adoption and engagement of digital technologies. I am a writer and author of nine books to date, and I've edited a further seven; phew what a lot for a Thursday afternoon :-)

This Post Has 7 Comments
  1. Can anyone tell me after hysterectomy does the doctor send.u hm in a hosiptal bed.

  2. Hello your story is the same as mine. I’m 31 and having my hysterectomy done in 2 days. I’ve been asking for one for 6 years now, I have 3 children and already had sterilisation. I’m very exited at the thought of not having any more pain and all the other stuff that comes with it. I have 2 weeks of the month where I am Ok and not bed bound. I’m also very nervous at the length of time my body will take to heal and what I will be able to do after the op.

  3. Hi ladies,
    Thank you so very much with your replies. Each one has been an eye opener for me and the advice you’ve given will really be useful 🙂 I can imagine what each of you have gone through and I’m just glad that you don’t have to suffer any more.
    I’ve had the Mirena coil and it was a bad experience. I knew before it was fitted that it would become displaced, but my consultant said it would be best and that it would only take a minor op to remove it. Well after 6 months the strings were lost. I had a ultrasound scan a couple of weeks later to find it, and there it was floating around the upper uterus, incased in a sac of fluid. Similar to a pregnancy, but the pain though was not the same haha it was an allergic reaction. Before I even got chance to get a referral to get it removed I lost all the fluid. I think it must of been the scan that caused it to break. The force of my bleeding dragged out the coil effortlessly, I only knew it had come out cause I heard the metal against the toilet when I flushed it, but if I’d of strung up a pig and gutted it, it wouldn’t of bled any more than I did. I honestly thought my insides were falling out with the clots 🙁 I’ve had all sorts of medications and they don’t work. The only time they come close to relieving any of my symptoms is when I’ve had to double up on something. I’ve had a GnRh shortly before my coil called Prostap SR and that made me feel fantastic. I’m currently on Goserelin (Zoladex) at the moment and still no change, but then I have only been on it for 3 weeks now. I’ve had enough, that’s all I keep saying to myself haha

  4. I feel your pain. I’m 35 years old and I just had my hysterectomy on Spetember 23rd. Let me tell you though I have seen and I’m not joking five different doctors in two states to get it done. They all told me the same thing, “Yes, a hysterectomy is what you need and no we wont do it because of your age.” Are you kidding me?? What does that have to do with anything?? Now I’m a mother of two sets of twins so I have four children. I had a tubal in 2006. I started having surgery after surgery starting the following year on my uterus for growths, fibroids and of course two yes two seperate ablations to correct my bleeding symptoms what have you. I would be in styrups sobbing as they tried again and again even though I told them it wasn’t possible to put a catherder in my uterus to fill it with fluid to do an ultrasound on it while they try and even using tongs to lift my uterus upward to get it in to no avail and no you dont get any pain meds for that. I refused to give up. I finally saw a male doctor and on my first visit he said “Why haven’t you had this done already??” I was shocked I told him my age and he looked up at me and said, “What does that have to do with anything? You have no quality of life and there is no reason not to do this.” He had a qualification list he had to give the insurance to get the surgery approved and it had numbers 1-4 on it he wrote in 5-7 along with it listing out all my conditions qualifying for the procedure. I was scheduled and done within the month and let me tell you although I’m still healing I can already tell you its amazing how different I feel. I am so ready to get on with my life. No painfull sex, no bleeding non stop or having to plan for bleeding in excess on vacations or very unfortunate timing, no more painfull procedures or bills related to it. It was scary and yes it hurt I’d say the pain and recovery is similiar to a C-section and I had mine done vaginally so I’m talking about the internal pain and discomfort you feel. Now keep in mind everyone is different. I read alot online about the procedure and I’d say do not believe everyone out there that goes on negatively about this. If your not sure or your not comfortable then you see another doctor get that second opinion and make sure its the best option for you and do it on you terms. Make sure you understand how long you’ll be outta work and the dangers and expectations you really need to have. Remember its rare that a doctor will elect to do an unneccessary procedure so usually if your discussing this with your doctor this is probably a really realistic treatment option for you.

  5. Hi,

    I am two and a half weeks post total abdominal hysterectomy. My ovaries and cervix were removed. I am so relieved and though the mending process is incapacitating it is worth every minute. Be aware that the pain killers offered at hospital can make you feel weird, just go with it…weird is better than pain. Get Cranbury juice in for urine infection block…get a long pillow and many pillows to support your body, legs and stomach. Do not risk picking up or manoeuvring anything heavy for a long time…I got the Hoover out….big mistake I think I stained something and my vagina nirt for a couple of days…, more time in bed helped mend me through…. I can’t take anti inflamitory pain killers so paracetamol and codine alternately every two hours really helped. For three days now I have been on paracetamol only. Listen to your body, she will complain at first, you will find yourself celebrationing your first poohs, remember not to push and let them fall, I am still taking stool softeners and that’s ok.

    Nothing is as bad as the pain BEfore hysterectomy…….

    Best of engery to you.

  6. Hi, I’m Helen have had mine at 34TAH with no children suffered massive problems amongst list you mentioned since17. I really feel for you I do. They usally try to leave it till as long as they can. U know it’s hard, I know it’s hard, but they have to also be certain that your stable enough and mentally able to handle it. It will make or break you. What I always say.
    I’ve seen on hospital women much younger than us. I also know how final a hysterectomy can be. Even knowing I could not have children. It is now I’m realising a true impact, but it has given me my sanity back.
    I’m not being harsh, your not insane. It is something that should not be taken lightly. Demand further tests I’m assuming marina has been suggested and capsules in your stomach. Temporary menopause.? I can’t advise you, only you can decide what’s best. I do hope you get it resolved. Understanding both sides medically too, which I never at first. My ovaries were left in even though they have pcos. I never understood why they could not take everything. I was told I would go in immediately menopause. She needed to help my bones as my frame was fragile. After having recent tests I now see why I’ve low calcium deficiency. I can’t have medication, as I’m on stuff that would seriously interact so I have to eat and drink as much dairy as I can even though I’ve really bad IBS.
    Medical professionals have been sued in past due to giving them then a patient advising they was not given any alternative.
    You know your body. You know what’s right. Get more blood tests for follate iron PCOS. And ask for a special one for ovarian cancer. As that progresses rapidly and grows un known. I hope it helps good luck xxx

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