Hi I’m 53 years old and have three children, here’s my hysterectomy story. After giving birth to my second and third children in 1999 and 2005, I had problems with my pelvic floor and had received NHS physio sessions to improve it, which it did a bit. In my late forties I took up running after discovering the NHS Couch to 5K and loved it.
My wife (now 65) has had a number of minor medical problems, both mental and physical, especially after reaching 40, and when she started having panic attacks, for which no-one could provide a positive reason or cure, she finally resorted to drugs, such as sertraline, much against her natural inclination.
My story started about five years ago at the age of 49. My periods were getting heavier and more frequent. I went to a gynaecologist and after having an ultrasound it was found that I had a 6 cm submucosal fibroid. I discussed options with the specialist and I decided at that time to wait and see what would happen and we would monitor things.
I am now 7 months 2 weeks after my hysterectomy and still experiencing debilitating post hysterectomy fatigue. I had an emergency procedure and was not well enough to have it having had such severe bleeding, anaemia and admissions for blood transfusions in the weeks preceding.
My mother was diagnosed with ovarian cancer in 1999 aged 72 and died shortly afterwards as it had spread. I went to my doctor and asked if I could have some sort of screening. Despite the fact there was no other family history of any type of cancer, my doctor agreed. So, each year I went for a CA125 blood test and an ultrasound scan (internal and/or external). They found that I had a cyst on one ovary but it was a normal cyst. So every year, I went and everything seemed fine and the cyst remained normal – but had grown over the last couple of years. No-one seemed concerned and thought it would go down as I am now post-menopause (59 now).
My experience began with a blood test as I was post menopause and started bleeding. The blood test had a high ca125 reading, never heard of this before but could be an indicator of ovarian cancer I was told. This was Xmas eve.
Went for different scans, tests and 3 months of waiting and was told I had a 16cm mass on ovary.
I had a very difficult birth with my only child 24 years ago, so when I first suspected I had a prolapse problem some 7 years ago, I hoped and hoped that it would just “go away”, hence the reason I lived with it for so long. I visited my GP 2 years after I realised things were not right. She diagnosed a bowel prolapse.
I had my total hysterectomy recently. As far as the hysterectomy is concerned all went really well. Op stayed keyhole as planned and I seemed to be doing well. That is until the morning after when they removed my catheter and I went for my first pee.