I write this story some 6 months after my hysterectomy, I was one of those people that used to pop in and read all the stories, which I must confess really helped me, especially the hints and the special things that would help. So here is my story. Sorry it is late.
Hello, at the age of 42 I had a TAH (keeping my ovaries) in December 2015. My problems started a year before that when I came off the mini pill in December 2014 because I was starting to bleed a little while taking it. By February 2016, I was bleeding so heavily and randomly that I became anaemic and was booked in for a scan.
I am a mother of 3 (22,17,15 yr old) I always thought I was quite lucky and never really had ‘monthly’ problems but for some reason 7 yrs ago when I was 37 I began with constant bleeding and constant pain and discomfort. It seamed to take over my life.
I have known about and with the doctors advice having a yearly check on a cyst on my ovary, each year it gets a little bigger but no concern still …… Then in July 2016 I was called into hospital within a week to be told that the cyst is believed to have turned ‘bad’ and would need surgery to have it removed straight away along with a full hysterectomy and then introduced to a Macmillan Nurse ….. To say I was scared would be wrong, I was numb and looking back now I believed I was in complete denial of what was happening.
The day I was told that I had a giant ovarian cyst I turned immediately to the internet for answers to the questions whizzing around my brain, but I quickly discovered that every story is a little bit different and finding answers quite difficult. Early on I decided to keep a diary of my journey, in the hope that it may help someone facing something similar. My way of coping with how anxious I felt was to approach it all like a work project (lots of research, preparation and organizing).
After months of excruciating pain every time I peed, worsening constipation and a continuous stabbing pain in the lower left hand side of my pelvic region, a diagnostic laparoscopy eventually uncovered the root of my problems. I had developed severe adenomyosis as a result of two previous CSs. I needed a hysterectomy.
I was diagnosed with a large fibroid which was described as Galia melon sized in December 2015. I had been having problems with excessive bleeding and incontinence and was experiencing pain during intercourse. Several months and several appointments, blood tests, scans etc. later I was advised to have a full hysterectomy. My consultant explained that one ovary would be left to prevent early onset of menopause and I was offered a surgery date for the 11 August 2016.
I started my periods at 10 yrs old. Always had issues periods making me bed ridden. Diagnosed polycystic ovaries. Lost 10 babies but I have a 23 year old and 12 year old biological children. My miracles. Both natural conceptions and born. But horrendous carrying them. That’s a different story.
I am 48 years old and in January 2016 I had a total abdominal hysterectomy and bilateral salpingo-oophorectomy for multiple large fibroids. I have suffered for years with very heavy and painful periods, which became steadily worst over time. I tried hormonal management together with pain medication and whilst it did help a bit, the problem was still there.
So I’ve decided to write about my ‘journey’….. I hate how that sounds!!….OK I’ll call it my experiences. Now I’m happy I’ve renamed it my ‘experiences’ I can start this.