2 1/2 years Post Op Total Abdominal Hysterectomy – Liz’s Story

Well ladies what can I say. I used this Forum a lot initially after my Op but was always optimistic I would be OK. How wrong I was. I’m not able to take HRT (history of breast cancer in family, and abnormal cells found earlier this year – so it`s definitely a no-no.

I am still experiencing these symptoms:

  • Sweats (regular) – GP giving Acupuncture which I do think has helped.
  • Sleep problems
  • Irritabililty/Low Mood (especially with partner)!
  • No Libido
  • Vaginal dryness
  • Pain in joints (ankles/elbows and fingers – especially in the morning)
  • Weight Gain (2 stones – or 28 lbs)

I have had several falls in the past 2 1/2 years so I have asked for a bone density scan to make sure I don`t need supplements for bones as well.

I am taking Linseed/Flaxseed Oil, and very recently started vitamin B6 (before succumbing to anti-depressants)!

In the past two and a half years I have experienced the following (all which I think have not helped my symptoms)

  • June 2010 – Total Abdominal Hysterectomy
  • July 2010 – Mother given terminal prognosis
  • Sept 2010 – Mother died
  • Sept 2010 -onwards – supporting Father.
  • Oct 2010 – nov 2010 – Counselling
  • December 2011 – Father had heart attack
  • March 2012 – Father seriously ill.
  • May 2012 – Father discharged from hospital
  • May 2012 – July 2012 – supporting Father to better health
  • July 2012 – Mammogram
  • Aug 2012 – Recalled for Mammogram and Biopsy
  • Sept 2012 – Operation to remove abnormal breast cells
  • Sept 2012 – Low Mood – Irritability – Depression??
  • Nov 2012 – new job (secondment until March 2013)
  • Dec 2012 – Daughter lost pregnancy

I am not wanting sympathy. I know we are all suffering in some way to be using this forum, but if anyone can give me some advice or inspiration to help me with a positive attitude for 2013 I would be extremely grateful.

For those ladies reading this before your operation – my advice – is get as much information as possible. Don’t be afraid to ask your Doctor or Consultant; I didn`t and wished I had so I had an informed choice. I will always regret my hysterectomy because I wasn`t convinced I needed it in the first place.

***************************************************************

in my own words book coverNow available on our online store and all other online book store’s. In My Own Words: Women’s Experience of Hysterectomy is full of many other real-life stories from women the world over.

Other people’s stories help women feel less isolated. They show that they aren’t going mad, missing the point or stupid.

6 comments

  1. Hi Julie – I have just come across some of the replies to my “story” and I just want to thank you for taking the time to respond. I am sorry to hear of your “story”. I can`t imagine what you have gone through. I am pleased that you have turned a huge corner in your journey. I hope your HRT helps you along the way. Unfortunately, that is one part of the journey I could not take.
    Moving forwards – slowly. But hopefully, with coaching and finally some Therapy, I know I will find my life again, and make the latter years of my life, enjoyable and free from battles. I hope you continue your journey with good health and free from pain. Kind Regards Liz x

  2. Hi Audrey – I have just come across your reply to my “story” and just want to thank you for taking the time to reply. I don`t know why I haven`t seen the reply earlier. Strange really that I should come across it today. I have been having coaching and today we discussed my issues around my Hysterectomy. I`m fine until I start talking about it, and then I break down. And everything you said – we talked about today. I know I can get past this, and I think I am beginning to accept and move on, which is being made slightly easier by my Menopause symptoms which are finally allowing me to sleep at the moment. Plus I got a puppy in May and the daily walking is beneficial. There is certainly therapy in stroking a dog – for me anyway. Thank you again.
    kind regards x

  3. H Liz, You have had 2 1/2 years of the most intense emotional turmoil, having very little time or space to concentrate on yourself and your recovery – physically, emotionally and psychologically. It’s no wonder you feel the way you do.
    If you can let go of all the negativity, sadness and anger, accept that it has happened like it did and you can’t change it or go back, then you can move on.
    I have found Mindfulness Meditation to be of great help in a similar situation, learning to be in the moment, letting the past go.
    Also I do believe our bodies hold on to the energy of physical and emotional trauma and tension and there are various massage techniques which can release this with amazing results – you could do an Internet search for this in your area.
    Above all this is now the time for you to be extra kind to yourself and start to put yourself first in your life.
    Best wishes for the future
    Audrey x

  4. Thank you Helen for your reply. I am trying to take a positive approach for 2013 and to move on with my life. I know you only have one life, and you should make every effort to enjoy it. i need to concentrate on my relationship with my husband who has been very patient and supportive, and try to get back to normal (or as normal as possible). I really appreciate you taking the time to comment on my post, and I am so glad you have had a more positive result with your treatment.

  5. Hi Liz, I was really sad to read everything you have been through over recent years. You say you don’t want sympathy, but sometimes we all need an extra bit of TLC and I hope you have a friend to give to a hug when you need one. As for inspiration, get a copy of “Chocolate for a woman’s soul” a series of true stories compiled by Kay Allenbach. The stories are mainly about American women, and although some are a bit too “godly” for me, I found both comfort and inspiration in many of these tales when I most needed it.
    Your regret over the hysterectomy is a huge issue and in a way you need to grieve about it. I had time on my side and made a conscious decision to embrace my hysterectomy (makes me sound like a complete hippy, but I am not!). After all the treatment I had previously experienced I wanted to move forward in a more positive way. Making that mind shift was so liberating.
    I hope things improve for you in 2013.
    Helen x

  6. Well I’ve had all that plus my daughter got lupus. Then my home burnt down. Lost everything. But ill tell you now I didn’t do anything from 33yr of age till I was 55yr of age. And what a fool I was wish I’d done it yr ago. I hadn’t gone through the change. And I am now on HRT not got it right yet. Bones ache, think its part of it. But it is worth it. Least I am not spend money on about six packs of sanitary towels a week. Loosing blood all the time. Having to plan my day on we’re next toilet is. All gone now. No more pads and go loo normal. No pads free women again at last. I only had it done nov 2012. Hope things go right for you soon feel for you.

Leave a Reply

%d bloggers like this: