Fibroids and Hysterectomy Recovery – Amanda’s Story

My fibroids and hysterectomy recovery story began on the 11 June 2013 when I had a fibroid the size of a 9 month pregnancy removed which is rare in white women along with a full hysterectomy. I had lost 7kilos after 4 days post op! My incision was vertical up to my belly button.

You may ask how I let the fibroid get so large! I just thought after the birth of my 12yr son I was gradually putting on weight. My stomach had never been checked with routine smears either. Before surgery I was very nervous. I had always been healthy.

I am now nearly 3 weeks post op and feeling really well in myself. I have started having some brown discharge which I will check with my GP if it is ok. My first straightening up and my first couple of steps was painful but it soon disappeared after a few trips to the toilet after my catheter was removed the following day.

I made sure I had laxative softeners as I was advised that this can create a problem. I did experience some trapped wind which was uncomfortable. It soon worked it self out with a bit of help. I only had strong painkillers for the first 2 days and then paracetamol for a couple more days.

Looking back it was so much easier and less painful than I had expected. For most of you do not worry it will be fine. The work is in recovery. Rest & walk a little. I hope my experience helps some of you 🙂

***************************************************************

in my own words book coverNow available on our online store and all other online book store’s. In My Own Words: Women’s Experience of Hysterectomy is full of many other real-life stories from women the world over.

Other people’s stories help women feel less isolated. They show that they aren’t going mad, missing the point or stupid.

6 comments

  1. I am glad I came across this site. I am due to have a full hysterectomy soon(was told two months ago it would be end Nov), but still waiting to hear from the hospital. I am very nervous about it all, not so much the recovery but the op itself, worried about complications.
    I have heard that some people have had to take meds prior to their op to help shrink the fibroids but this has not been offered to me. Should it have been?
    My fibroid is 12x14cm, wish I had gone to gp sooner, but just thought I was putting on weight and my hectic job as a food tech teacher just meant I ignored health issues. I asked if I could have the treatment through vein in leg ( done by radiology) but consultant said on fibroid this size it is unlikely it would make a difference and can lead to later complications, and recommends full H.
    I wish the wait does not have to be so long, how long has everyone else had to wait?
    As you can tell I am nervous and very tearful about it. I have a 13 year old son, and having more kids is not what I want anyway but can’t shake the anxiety.
    I am glad to read successful stories.

  2. It’s good to read of other women’s experiences on this website. I’d known for about 18 months that I had at least one fibroid of 4ins. I left it far too long before coming to terms with having a hysterectomy and by the time I had surgery on 13 August 13, the main fibroid was 18-20 ins and I had to have a vertical incision, removal of one ovary and both tubes (i didnt want to take Zoldex, but wish I’d tried it) Prior to having surgery I’d read lots on the Internet which did help me mentally prepare, but the day after surgery I read 101 hints for a happy hysterectomy, I wish I’d read it before hand but was too apprehensive, I’d recommend reading it before, but its still been useful afterwards. The tip about how to get out of bed came at exactly the right time as I had to get out of bed quickly following being given suppositories as I was very constipated, and there were no nurses available. I had been offered lactulose the day before, really wish I’d taken up the offer.
    I believe I’m recovering well after the op and I am only taking paracetamol occasionally. it’s been 3 weeks, I’m taking daily slow walks and am building up the distance gradually. I’ve had real trouble with constipation and am taking lactulose and prune juice and eating more fruit (sorry prob too much info!!), also experiencing heaviness/twinges/lumps on incision site which I understand is part of the healing process. I’ve really appreciated the emails from the Hyst assoc and the feeling that you are not alone. Keep up the good work.

  3. I’m now 5 weeks post op after a total abdominal hysterectomy and other than a few niggles I feel great! Don’t hesitate the op is not as bad as it sounds!

  4. I too have a similar tale to you both. Its now 3.5 weeks since I had my hysterectomy and removal of 2 fibroids, one weighing 7lb and one weighing 1lb. They were sat on top of one another with the smaller one at the bottom doing the damage.

    I feel good but Im having problems with my wound healing in this weather. The nurses at my Doctors have been fantastic but I see it just as a blip on my road to recovery.

    When I think back to the pain I was in before the operation, that’s what keeps me going and trying to be positive.

    Hope you both go on well and have a speedy recovery

    Best Wishes

    Fiona

  5. Hi
    I suffered with terrible bleeding for months then while on holiday in May was rushed into hospital because of losing horrendous blood clots. My blood pressure dropped so low that they nearly lost me. I was given transamic acid, provera, iron, and eventually a zoladex injection then transferred home. It’s now July and I am still being given zoladex by my doctor who has booked me in for a hysterectomy but said it will
    Be 3 months or so!! Zoladex has made me put on half a stone already..if I keep on I will need a new wardrobe!! Your stories have put me at ease about having the op as I was given the choice of operation or staying on zoladex. Been told to lose weight before operation but as I exercise and lose a pound..I get injected and put on two pounds..I can’t win

  6. Hi Amanda – my hysterectomy for the same thing was on the same date as you 🙂

    I too had a very large fibroid the size of being 5 ½months pregnant. I too also just put it down to getting older and putting on weight. I had been having problems with what was initially diagnosed as IBS – turns out it wasn’t that. The size of the fibroid was pressing on my bowel.

    I had to have total hysterectomy (uterus, ovaries & cervix) and the surgeon said everything went fine. I was very determined to be positive as soon as the surgery was done as I was initially referred to the specialist with the ‘lump’ as an urgent cancer referral so for it to be non cancerous fibroid was such a massive relief and so after spending 3 months in total fear of what was actually growing inside me, I was going to be positive.

    I too didn’t need any painkillers by a week after the surgery. I’m not in any pain now but am getting weird ‘twinges’ behind the wound and round my abdomen, but I know this is just down to the healing process of everything having to knit back together again.

    I feel ok in myself but get so frustrated because I can’t do anything. I’m walking around the house a lot, but realise I need to rest more.

    I just wish though that the hospital gave more information about how the recovery will go, i.e. the twinges slight aches and pains, how long til the inside stitching heals etc. I don’t know if I’m being over hesitant in certain movements (i.e. sleeping on my side – is it ok now 3 weeks have passed???)

    Anyway, I hope you too have a full and speedy recovery 🙂

    Best Wishes

    Julie

Leave a Reply

%d bloggers like this: