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Total hysterectomy age 40 – Lynn’s Story

Since I started my periods at age 13 I suffered from painful periods. The pain got gradually worse over the years. I tried every possible type of contraceptive to help with the pain including Depo-Provera injections and the Mirena Coil but nothing helped much. I had numerous scans and laparoscopies but other than a few lesions and small spots of endometriosis there was nothing to explain the pain I was in.

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A weight lifted – Sarah’s Hysterectomy Story

I’ve always had heavy irregular periods and we’re told I should probably consider having children sooner rather than later. I got married at 23 and started trying for a family straight away. I had five miscarriages, numerous tests and had diagnosis ranging from endometriosis – lupus – polycystic ovaries. All of which I felt were guesswork as despite having tests I always felt like I was never really taken seriously.

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Trying To Make A Difference In Endometriosis and Adenomyosis

I’ve suffered horribly with Endometriosis and Adenomyosis possibly and I’ve contributed some of my story to this site in the past (campaigning-for-better-recognition-of-endometriosis-and-adenomyosis-elaines-story/). However, I was also desperately keen to try to improve things for other sufferers; although I admit that I was maybe a little uncertain as to how.

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Adenomyosis is a condition in which the lining of the womb/uterus (called the endometrium) is found within the muscles of the womb (called the myometrium). It can be in just one area or be found throughout the whole of the womb muscle. Although it involves the lining of the womb appearing where it shouldn’t, adenomyosis is not the same as endometriosis. Researchers have now concluded that the two conditions together are found in only 10% of cases although it has also been known to be misdiagnosed as fibroids.

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